Noah Russell has Tuberous Sclerosis, a genetic disease where non-cancerous tumors are formed all over the body, which can lead to serious health problems. Noah is turning four in May of 2018. He has the ability to walk and communicate through some sign language, but is completely non-verbal. He also has seizures, brain tubers (non-cancerous tumors), cognitive delay, polycystic kidney disease, low muscle tone, and rhobdomyomas (tumors in the heart muscle).

He has been in the hospital for weeks at a time and is hospitalized once a month for testing. Noah takes between 27 and 40 pills a day to control his seizures and help him function better, but the medications are always being adjusted to keep everything under control.

Noah is in a preschool that offers several types of therapy, which has helped him gain the ability to walk. He does still struggle with stairs and daily activities, but he can now feed himself. For the summer months, he has been put on a waiting list to get into various therapy sessions, while school is not in session.

Noah is expected to live a decently long life of at least 40 years. The doctors told the parents that he could become an engineer or be in the corner licking walls for the rest of his life. The family does not have much hope for him to be completely independent, but they do think he will improve and be partially independent.